So, I may have mentioned that we are challenging the DLA ruling. This is not something I would recommend doing on your own: The forms are complicated and long. I am fortunate that the school which my daughter attends offers the ability to book a ‘drop in’ session with the lovely folks from citizens’ advice.
I do find it strange that you have to book a drop in session, but that may just be me. Anyhow, I did this, and the lady I spoke to was lovely, exceptionally helpful, and has obviously done this type of thing multiple times before. She had several sheets of information on the criteria needed to qualify for the high level mobility, and it turned out that my daughter did in fact meet all of them. She also knew the ways to phrase the information so that it was coherent and to the point.
The problem is that, as with any form to do with benefits and disabilities, you always have to focus on your loved one in the worst light. It can be a bit soul destroying. It was compounded by receiving the draft to go through on the day that her EHCP was up for review. So I have spent the day looking at paperwork, which is no one’s favourite activity, and all of it was about the worst aspects of my daughter’s behaviour and development.
Nothing like that to make you feel cheery with the world. We then arrive at her sports club to find that there are chuggers (“charity muggers” for those not familiar with the term) parked in the cafe, trying to sign people up for donations using false information about how close they are to a cure for breast cancer. The only problem being that their own website doesn’t mention the research they are advertising, and they seem to think there is only one type of breast cancer.
They also are trying to sell T-cell genetic therapy as a silver bullet that in five years time will be available to cure all cancer. I hate people using hope to sell a product they don’t get.
It’s very frustrating. I may have snapped at them. They are now looking at me sheepishly.
Ah well, we’re not here for that long. Only another 3 hours…
Raising the Modern Fae 