Motheroffae

The cyclic pain of the summer holiday.

Last week I didn’t write a post. This is because, like many of you, I am in the depths of the summer holiday. 6 weeks of freedom from routine and the humdrum of school and nursery life. For a lot of families this means the excitement of holidays in far flung places (or at leastContinue reading “The cyclic pain of the summer holiday.”

The blood and agony of bedtime routine (and why it’s worth it)

Our daughter has a bedtime routine. She will go to bed happily and stay there all night. On a good day she won’t get up until about 7am. On a bad day she’s up at 4am, on average she gets up somewhere between 5 and 6. This was not something achieved without significant effort onContinue reading “The blood and agony of bedtime routine (and why it’s worth it)”

The Importance of Routine

I have recently been reminded of the importance of having a routine in the lives of fae children. In all children, in fact, but doubly for those of a neuro-divergent disposition. Routines and structure give children security and a sense of safety; without it they are more inclined to act out. Studies have shown thatContinue reading “The Importance of Routine”

More on Eating and Feeding

Despite what the book said and the indoctrination of at least 50% of every baby aisle I did not go down the pureed food and baby jar route. I used baby-led weaning, and this was done after conducting a lot of my own research. By research I don’t mean I sat and watched you tubeContinue reading “More on Eating and Feeding”

Can’t eat wont eat

Can’t eat, Won’t eat. Our fae has the most esoteric eating habits. She will go through phases where it doesn’t matter what I put in front of her, she can’t eat it fast enough. It puts me in my happy place to watch my stringbean of a child scarf nutritious food down as fast asContinue reading “Can’t eat wont eat”

The pregnancy and birth of my fae

Thinking back to the birth of my fae…. It could have been smoother but it could have been a lot worse. Believe it or not, signs of the forthcoming arrival of a fae baby may start even before the birth. My first thought that we may be expecting one was when I found myself inContinue reading “The pregnancy and birth of my fae”

A guide to the EHCP

A guide to the EHCP An Educational Health Care Plan is a legal document that outlines the requirements and entitlements of your fae for the coming academic year. It was previously known as a statement. As with the statement it is reviewed each year and any changes to requirements are updated and targets reassessed. InContinue reading “A guide to the EHCP”

The blue parking badge

Blue badge what you don’t know and how to apply. The blue badge What came as a big surprise to us was that we qualified for the blue badge and disability parking in the first place. When we were told this by our social worker we did, I admit, raise an eyebrow and ask ifContinue reading “The blue parking badge”

First meeting bingo

We have, as I expect most parents of fae children do, a lot of meetings with health care professionals and therapists. We have started to notice a pattern in the things they say upon first observing our daughter. At first this was irritating, as none of these comments were at all helpful nor insightful, soContinue reading “First meeting bingo”

A guide to the DLA

Guide to the DLA for under 16s The Disability Living Allowance is a benefit, provided to support people who incur extra expense due to a physical or mental disability. There a 2 forms, make sure you download and fill in the correct one for the age of the applicant. For most Fae children that willContinue reading “A guide to the DLA”