Author Archives: Motheroffae

This week is our daughter’s birthday. I always find myself reflecting at this time of year over the struggles we have faced since her diagnosis and what progress we have made. This year there have been some striking differences that have made significant improvements to the lives of all of us. Our fae made someContinue reading “Finding our village”

This year, for the first time since she was a baby, we attempted to have Christmas at a relative’s house. This was not a decision we took lightly, or with any sense of ease. In fact, had my father not died in the summer, we would not have done it at all. But leaving myContinue reading “Well thank crunchy that’s over.”

During the October half term, I attempted to fulfil a promise – made to my fae in August by her  childminder – of taking her on a train. I hoped to make it an exciting day out, as my mother, who was recently widowed, was up to see us for the first time since theContinue reading “Choochoo Santa”

There is a “joke” that regularly makes the rounds online: you don’t know tired unless you’re ’parent tired’. Every time he sees this, my husband grits his teeth and tries not to snap that the people posting this (and it is always parents of neuro-typical children, as the rest of us don’t have the time)Continue reading “Parenting in easy mode”

Ever since Halloween ended, houses on our estate have been gleefully assembling their Christmas displays. I’m no humbug (at least not anymore, I used to be, but that’s a story for another post) but November 1st does seem ridiculously early to put up enough lights to drain the Eastern seaboard and cause seizures in theContinue reading “‘‘Tis the season for miracles”