Parenting in easy mode

There is a “joke” that regularly makes the rounds online: you don’t know tired unless you’re ’parent tired’. Every time he sees this, my husband grits his teeth and tries not to snap that the people posting this (and it is always parents of neuro-typical children, as the rest of us don’t have the time) themselves don’t know tired, as they are “parenting on easy mode.”

It is an ongoing bugbear of mine – and of the mothers of other neuro-spicy children I know – that parents of NT children will frequently offer advice and counselling. Normally in a sage tone, like they have all the answers and know everything about our challenges.

Here’s a newsflash. If your child is developing at the normal rate: can survive and understand society in a way that’s deemed acceptable for their age; doesn’t routinely go home and crumple into an emotional or physical mess; can sleep on an average night without the need for chemical or hormonal treatments… then don’t give us your two pence worth. You have NO idea what we are facing with children who don’t fit the typical mold.

At present, I am typing this in a soft play, grateful that I don’t need to look at the keyboard (and that my husband will edit it to make it make sense and check the SPAG later) so I can keep my eyes fixed on my daughter. I can’t take my attention off her. She is continually trying to engage with other babies and their parents. She will try and adopt the parents, or encourage younger children on to equipment that is too advanced for them. Not out of malice, but because she doesn’t understand that smaller children and babies should not be on drop slides, and their parents may not approve of this. I also need to keep her out of the baby areas. I can’t tell her and expect her to play in the areas she should be in because she doesn’t ’get it’. 

I don’t need to hear about what works for your child: it won’t work for mine. I don’t care if your 10 year old will do what you ask, because you were ‘strict when they were young and told them no’ – good for you. My kid was non-verbal and *didn’t understand* being told anything, so explain how that would work. I don’t want to know that you toileted your youngest pre-birth and were teaching them calculus at 3 months. I don’t care. 

I have been told, as have others in my situation, that I should put her in time out or other consequences. These have no meaning for my daughter. She doesn’t understand why she is being punished, or even that it is a punishment, so there is no point. Thus far, the most effective threat we have found for her is ‘I will boop your nose’. 

Seriously. Not something that would work with most kids, but for mine it’s the best way of distracting her out of whatever she has hyper fixated on at that moment. She’ll stop what she’s doing (yay!) in order to gigglingly protect her nose from the ominous adult finger. It’s also something you can growl (or yell) in public and no one will report you for it. So, win-win. 

So if you’re parenting in easy mode, and you know or meet parents that have neuro-divergent kids, please do us all a favour and don’t offer advice unless asked for it.

‘‘Tis the season for miracles

Ever since Halloween ended, houses on our estate have been gleefully assembling their Christmas displays. I’m no humbug (at least not anymore, I used to be, but that’s a story for another post) but November 1st does seem ridiculously early to put up enough lights to drain the Eastern seaboard and cause seizures in the vulnerable. It also has sent my fae daughter into paroxysms of excitement every time we enter or leave the area. 

The shops, too, have had their Christmas wares in full display since September. I have been grumbling about being attacked with green and red glitter whilst looking for pumpkins for even longer than I’ve been bitching about the lights. 

That said, last week, in an excursion that will go down in history as one of our more notable miscalculations, we decided to take our daughter clothes shopping after school. This trip was prompted by picking her up, and once again being informed that she had managed to soak her ‘waterproof’ school boots. And despite the staff’s best efforts they were still a bit damp. Fine, we thought, we’ll go to a cheap clothing outlet (starts with ‘M’ and ends with ‘atalan’) and buy her some wellies that can be left in school for when the urge to jump in puddles takes her. 

All this, we explained to her whilst we sat in a coffee shop, whilst she chowed down on a mixture of crisps, chocolate cake and marshmallows. (Follow me for more great recipes!) She approved of the idea, so off we trotted.

Upon entering the store, her eyes became saucers at the sheer amount of sparkly clothes, the Christmas music, and the matching pjs that came in sizes for her and us. We realised that we had made a terrible mistake when she took in the wheeled basket that was just the right height for her to push as a mini-trolley. With a squeal of delight she was off, and the only criteria for her choices seemed to be ”Does it fit me? And if not, will it fit one of my stuffed toys?” We were putting things back  on the rack as fast as she was trying to take them off, in her own version of Supermarket Sweep. By the time we reached the footwear section, she still had found a set of pjs with eye-mask; a princess top; and a Christmas jumper – all of which were somehow essential to her mental health. So £60 later we finally managed to crowbar her out the shop we’d gone into for some cheap wellies.

That night, she cheerfully changed into her new pyjamas and donned the mask.. and something magical happened. Within minutes, she was asleep. Seriously! This child who views unconsciousness as her mortal enemy, one to fight with her last breath was … asleep. She was so exhausted by her lifelong battle against slumber that just being forced to have her eyes shut was enough for her to drift into the arms of Morpheus!

Not only that: because the mask was thick, she didn’t care which lights were on. The same thing has happened every night since. This thing is amazing! 

I wish I’d known years ago that all it would take to get her to sleep was a set of pyjamas with a matching mask. Not only that: now she will wear the mask while the Pjs are in the wash. So that’s £60 well spent as far as we’re concerned. 

I went back today and got another set that was a size or two bigger, just in case she grows again: no way am I losing this miracle any time soon!

Reading in the dark

Our daughter caught a virus at school. I think she has a respiratory infection; my husband is firmly in the ‘just a cold’ camp. Either way she has a cough; bunged-up nose; and, most, recently, a sudden aversion to any light in her bedroom when settling at night. She started by trying to hide under a cushion, but this made it hard to breathe, so she tried to bury herself in my chest. This made it difficult for me to leave, and consistently work her up every time I got off the bed. Eventually, we bit the bullet and just told her the stories that we could in the dark – the ones we have memorised.

Which is all very well with simple stories like The Gruffalo and Stickman, but her most cherished book/nighttime read is The Rime of the Ancient Mariner by Samual Coleridge. Which is somewhat longer, and has more challenging prose. My husband is very good: he can do, I would say, 99% of the poem without prompt. But every now and then, it is nice to be able to check the start of a line or verse. 

So, we bought from our favourite online river a couple of book lights that proclaimed ‘low level’ light settings, allegedly ‘perfect for nighttime reading’.

Long story short: they lie. They lit up the room like a Christmas tree. My husband has taken to hiding his light in his hand to muffle it; mine fits snugly down my shirt, which does mute it but I then need to snap my fingers several times to stop said husband from staring at what the light is now illuminating. I tried duck tape but it blocks everything; if you punch little holes in the tape you get a wonderful constellation effect and then she just stares at the stars rather than sleeping.

It was a relief when she allowed us to use the side light again. Only for reading, mind, as she has now decided that using the book light to make a shadow theatre is an integral part of her evening routine. 

All this because of her love of long poems. A while back, we bought an illustrated copy of Beowulf, but neither of us have the courage to show it to her.

Something wicked this way went

Why don’t we have a unified half term in England anymore? Letting each local authority set their own term times is moronic. If you have children who go to schools in different authorities it can mean that they never see each other in their half terms; teachers can have different weeks off from their kids; and the only ones who benefit are the travel companies who hike the prices of holidays for twice the time.

Anyway, onto my main post. 

As you can probably deduce, my fae has just gone back to school for the second half of the Winter term. This half term, I decided to try and do some nice things for her and, with the support of my In-laws (I would never have managed it on my own) – we hosted a Halloween party for her. I have never been to, let alone hosted, a Halloween party. I don’t know where everyone else turns when they have questions about anything from the practical to the philosophical, but I use google. 

A quick browse through ‘help I’m hosting Halloween’ and ‘Good ideas for children’s parties’ lead me down a rabbit hole of ‘what is a piñata?’, ‘Age appropriate activities for 5 year olds’ to a debate if beer pong could be acceptable for the parents, providing the kids didn’t have access to it. I quickly gave up with the ‘mommy blogs’ ( and for anyone who puts this blog in that category I take offence, I’m not that pretty, organised, happy or perky) which showed happy, shiny people standing with big smiles behind tables of home made food, with little cherubs with home face painted faces that all were recognisable as what they were supposed to be. I knew my party would not be that. 

Our party would have the parents outnumber the children; if they turned up in costume they definitely wouldn’t end the evening in it; and at least one participant would be in a wheelchair. It would be messy, loud, chaotic and much more fun then the staged photos. I gave up on google and headed to Amazon. 

An extortionate amount of money later, we were in possession of a set of decorations, plates, tablecloth and face-paints (which were for me, not them). I then remember that at least one child is vegan, and that they are made ill by animal protein, so it’s back to google for recipes. If I haven’t made it clear already, I am a big fan of online ordering: food and items magically arrive at your house. 

The day before the party I spent rearranging the house so the wheelchair would fit through the normally blocked hallways, whilst my in-laws did an amazing job of putting up the decorations. By the time my fae returned home from her childminder, the downstairs of the house looked amazing and she was clearly excited. So excited, in fact, that she had to get up at 4am the day of the party. Still it gave me 12 hours to make the cupcakes and cookies from recipes that I found online. It turns out if you put the cookies and the coloured icing in front of children, you don’t have to actually decorate, you can give it to them as a ‘party activity’ and they do it for you. Score! 

As for everything else: we fuelled them up on a few sandwiches; took them out trick or treating; and allowed them to collect their own bodyweight in candy. This was much easier than trying to stop them buzzing around the house like a swarm of riled hornets. 

By 4 (the party was supposed to start at 4pm but I accidentally put 3 on the book of faces, so half the guests turned up early) some of the kids were done with everything and heading home and some hadn’t even arrived; I hadn’t finished putting my costume on; and one parent had texted me to tell me that they had used temporary tattoo paint instead of eyeliner and so were stuck as a cat for the next 3 days.

My predictions of chaos were at least accurate.

I forgot the glow bracelets when we took them out in the dark; I didn’t get the time to put my face mask on; and we completely ran out of spiders for pin the spider on the web (seriously 4 kids, 30 spiders.. it should have been enough). The witch’s hats that were supposed to be hoopla targets were used as inflatable cudgels, and after fights broke out for it I think 6 kids are getting x-rocker chairs for xmas. My mother-in-law had a heart attack when one child shoved my daughter, but she blithely shook it off and roared at the offending child (who’s child doesn’t turn into a mermaid-dinosaur hybrid for Halloween?) and they went off happily together. Situation normal, apparently.

Everyone had fun, and two parents confessed to stealing the cookies out of the goody bags I sent home before their offspring had a chance to see them, so I guess they were a hit. So I think we will call the evening a success. 

Now a month’s break before planning the xmas party, bring on the eggnog. 

Flight of the butterfly part 2

So, I meant to write this update some time ago, but life happened and got in the way. Somehow, my daughter has got it in her head that being a human is a dull existence (she’s not entirely wrong) and is trying out being different species.

She tried being a lizard but was unimpressed that she couldn’t stick to the walls and climb to the ceiling. She tried being a spider, but no matter how much effort she put into it, she couldn’t spin a web (all that happened were some impressive farts that made the cat dart out of the house with its eyes watering). She has more success being a puppy, but I was becoming concerned that I was raising a baby furry, and told her to knock it off or I would take all her stuffed dogs out of her bedroom: we have just spent 5 years getting her to speak English; I’m not going to have her start barking instead.

Most recently she has gone back(!) to being a butterfly. Specifically a monarch blue butterfly. (She would, of course, be a royal butterfly.) She has demanded, and been provided with, a pair of blue wings. This is a piece of hair-thin nylon that has two straps of elastic to keep it on her shoulders and two more little loops of elastic to link them to the middle finger of each hand. She has been happily flapping around the house ever since. Occasionally, she has flung herself off the sideboard, flailing her arms and claiming she has achieved flight. She is reluctant to believe that she is (in the words of Toy story) ‘falling with style’.

She has also decided that, because she is a butterfly, my husband and I must also be butterflies. Thus, I now have a delightful set of light up wings that do my head in every time they ping off and smack me in the head, and in a moment of sheer Machiavellian genius she demanded that my husband get a pair of green toddler fairy wings. My husband is (as I think I have mentioned) 6’4 and built like Captain America, but when your 5 year old bats their eyes and asks you to wear the wings YOU WEAR THE WINGS (and then ask your wife to help you get them off after).

This was all very well, until she stood at the top of the stairs, contemplating the top floor balcony, and announced she was ‘going to fly downstairs’. I would like to say that our fae does have some sense of self preservation, and would not throw herself off a 20ft drop believing that flapping her arms would save her. I really would like to say that, but it would be a lie. She has NO sense of self preservation, and I’m not entirely convinced that she wouldn’t do this. So, at the moment, her wings are now only allowed downstairs, and she is very upset that I have literally clipped her wings. 

I can’t wait to find out what she’ll try to be next.

Wilful Ignorance

I recently found something that really got my goat. In fact after several days I am still wound up enough that my blood pressure is still in the red, and it is something I feel I will share so it can wind you up as well. Or not – maybe I’m on my own with this.

A child that my fae plays with at her childminder’s is starting to show behaviours that indicate that they should be assessed for neurodivergent spectrum conditions. He is a little over two; non-verbal; unable to follow simple commands like ‘put on your shoes’; can’t identify any body parts; and will not make eye contact. When this was flagged with the parents and health visitor, all were reluctant to pursue any diagnosis or investigation because he might be ‘mislabelled’. 

This makes me tear my hair out. I have spoken to numerous adults online, young and old, who have finally been diagnosed – some in their late teens, some in later life – with autism, or ADHD, or something like, and have told their parents only to be told ‘oh yeah, we knew, but wanted you to be normal, so didn’t tell you’. You WANTED your child to struggle!? To think they were stupid? That they were a freak? So you didn’t tell them??? 

Better yet ‘we didn’t want you to be drugged’. Where have I mentioned drugs? A diagnosis is not a prescription. My daughter is not prescribed anything. She has the support she needs and is lucky enough that she doesn’t have a chemical imbalance that requires chemical intervention. If more children had the proper support and access to that, less would need drugs (don’t get me wrong, for some there is an absolute need for medication but it would be drastically reduced if more support was offered). 

So, at the end of the day, I can only assume that some parents feel that there is a stigma to a neuro-spicy diagnosis. The answer, then, is simple: don’t tell anyone who doesn’t need to know. FYI your child does need to know, as do their teachers and any medical professionals / social workers in charge of their care. But friends and family do not. 

And so what if they are misdiagnosed? Oh no: your child will get some extra support, the horror. So, please spank your inner moppet or whatever and get over yourself, and make the appointments for assessment. 

Finally, an assessment might show that your child has some underlying issue that is solvable e.g. glue-ear or a simple wax build up so they can’t hear. They might be tongue-tied, which is why they  don’t talk. These things are physical, solvable and will drastically improve everyone’s quality of life. 

There is no excuse not to seek medical help for a child in the UK. It may take time but we still (at time of writing) have an NHS that will treat them for no cost. So do it!

I’ll get off my soapbox now.

Being Good

We have rules in our house. I’m sure everyone does. Importantly, they apply to us as well as our daughter. The most sacred of them is ‘if you say it, do it’. This goes for consequences, as well as rewards. We never promise anything that we are not sure we can deliver on. This means that she never calls our bluff on anything – which is a saving grace as it allows us to quell misbehavior with a simple ‘either/or’ choice. For example, “Either you sit properly in your car seat, or I will put this chocolate in the bin.” You’d be amazed how fast she can buckle up and sit right. 

Right now, our fae is going through a phase of seeing sleep as the enemy: one that must be fought on every front. She will weld her eyes open in bed; plead for just ‘one more’ story; and do everything she can to stay up late. I would say she’s suffering from FOMO.. but seriously, once she’s asleep, all we do is sit on the couch and scroll instagram whilst drinking tea. I’d love to have the energy to do anything else. 

To this end, my kid found a new way to stay up late by ‘being good’. She has recently discovered (via a show called “Yakka Dee’) soft boiled eggs. For anyone not yet familiar with this particular animated children’s entertainment: keep it that way, unless you are a fan of constant repetition or raising a functional mute. Each episode is just a few minutes long, and consists of repeating the same word over and over until you feel your eyelid twitching, and the urge to hurl something – possibly yourself – through the screen is almost unbearable. 

Eating the egg takes a while which means our evening routine is already running late, which we are okay with, as this is the first non-porridge food she has eaten since January. She then looked around with a calculating look and decided she wants an apple. Again, whilst this will take time, fruit is good for you and eating them is to be encouraged. So she gets a (peeled, sliced) apple. Halfway through it she wants a banana instead. I tell her she can’t have a banana because she hasn’t finished the apple. She proceeds to take 40 fricking minutes to eat the goddamn thing and THEN smugly demands the banana. By which time we’re so late for her bath that we should put her straight to bed, except breaking routine is as bad as breaking rules.

And I can’t say no, because she kept her side of the deal by eating the apple. This kid doesn’t eat fruit.  She has never been fond of fruit, but no, today, 40 mins on an apple and 30 on a banana because proving a point is a hill she will die on. This has my husband cracking up as he knows she’s doing it to see how long she can extend dinner by, I know it, and she knows it and there is absolutely NOTHING I can do about it. Because she is Being Good. 

Still, the day after, it was my turn to try and keep a straight face: when he asked her if she ‘wanted anything else to eat’ after eating her porridge.. and she wanted a dippy egg. Which he had to then cook and present to her. Because eggs are good for you!

(She also made us play one of the most bizarre games of “I spy” ever known whilst she ate the egg. It starts out different by saying the colour of the object instead of the letter. Fair enough, she can’t spell. But then it went meta – “I spy, with my little eye, something hiding.”

Not to be outdone, her dad went back with “Is it a big green monster with three eyes and purple toenails?!?” She gave him a strange look and said “No, daddy” which he seemed very relieved to hear.

By the end of the game, we had looked for “things you can’t see” and “things that are invisible” and “someone that isn’t eating the damned egg fast enough” and I think maybe we need to introduce some rules to this game)

She was late to bed that night too. 

Being good my arse.

Spotting the fae’s

This weekend, my daughter was invited to a birthday party. She was one of 4 known fae children, in a room containing 30+ youngsters: running around; bouncing on one of 4 bouncy castles; eating candy floss; and generally going manic. It was an interesting study: once you know what to look for, it is very easy to spot the neuro-spicy kids, even in the melee that was going on in there.

First, to set the scene: we were crammed into what I presume during the week is some sort of nursery, but looked like a large village hall. In it were the aforementioned bouncy castles; a small stall where people could get the candy floss; a long table set with kids party food; and the deafening sound of poorly performed Disney cover music. The music was loud enough to drown out the kids screaming and the noise of the generators for the inflatables, and made conversation practically impossible. Why is it necessary to have music at this volume? (Yes, I sound like a grumpy old lady. No, I don’t care).

Ten minutes after arriving, my daughter has climbed the side of a bouncy castle and is allowing the constant motion of the mini-mosh pit from below to rock her to sleep despite the noise. Her fae friend thinks this looks like an excellent perch, and tries to join her, but lacks the physical capability to climb so has to get a boost by climbing on nearby ‘normal’ kids who can’t see the appeal of climbing the sides of their inflatable fortress. Looking around, they are the only two on the side. A third fae child is (in my view, sensibly) wearing ear defenders, and runs past to devour the end of his second stick of candy floss (these were both the size of his head, and required perseverance to consume). 

Halfway through the session, I spot my child who has, at some point, ‘lost’ her socks. When interrogated, she reluctantly points to a safety mat where, with some effort, I extract her socks from underneath. She point blankly refuses to put them back on. I try to make her, but I’m still holding her sodding candy floss in one hand – she got an extra large one by looking cute at the stall holder. She doesn’t even LIKE candy floss. I manage to grab her round the waist and haul her like an uncooperative and angry set of flies over to my husband, whilst she dead weights on the floor flapping her legs in the air like a landed fish. The same best friend from the wall-climbing saga thinks this looks like a great dance move and flops down on the safety mats under the inflatable slide and mimics her. I always knew my girl was a leader. Many other neuro-typical children start edging away, somewhat confused. The fae with ear defenders steps over both of them to get more candy floss from his parents. 

15 minutes before the end of the session, the final fae child seizes his opportunity: whilst most children and parents are occupied playing musical statues, he decides to take a running jump and somersault down the largest inflatable slide. His parents watch in horror; he flunks the dismount; and lands like a sack of potatoes on the safety mat where his sister was doing the ‘landed fish’ dance earlier. This distracts the staff member running the musical statues game long enough for my daughter to help herself to the prize sweets despite never managing to be a ‘statue’ in her life. 

Finally, they are called to sing happy birthday to the birthday girl – of landed fish fame. She is nowhere to be found, until both she and my daughter reappear from an out of bounds area where the slushy machine was located. I pretended not to notice. 

During the party tea, my daughter would not eat anything, so I provided her with emergency snacks (trust me all parents of fae carry emergency snacks); the birthday girl only ate the sausage rolls; her brother only ate the cup cakes – of which he had three; and ear defenders had all the bags of vegan cheesy puffs my daughter could steal for him. Every other child ate what was put in front of them. None of them would drink the juice, and all of them left early to go bounce again. 

Throughout the party all the other parents sat around, chatted and looked relaxed. I hope they could feel the hate emanating from our haggard corner where no one ate, barely sat down and ended up sticky and covered in half eaten candy floss. 

Also, if you find my daughter’s socks: keep ‘em, they’ve probably evolved by now.

Decisions and delegating

In our house, if there is a difficult decision to be made, such as where to hang a picture or what colour to order an item in, that decision is made by our fae. Seriously: I am hopeless and can vacillate for hours (or, in some cases, years) of making a choice (I still haven’t worked out what I want to do with my life). My husband is sometimes better than me at it.. but not always. Our daughter, however, has, at the age of 5, more sense of direction and purpose than I have ever felt. She seems to know exactly what she wants, and how to get it. She will happily lead a group of adults on a walk, regardless of whether or not she has ever been on the trail before. So, it seems to make sense that all decision making is delegated to her.

On the other hand, she is herself exceptional at delegation, frequently getting others to do things for her. Our house is covered in Hama/fuse bead models (if you don’t know what these are, I envy you, but see picture below). These are made by tediously and monotonously placing small pieces of plastic onto a board as per the design. Then (in the case of hama beads) you iron them so they melt and form a cohesive picture; or (in the case of fuse beads) spray liberally with water until the PVA hydrates and glues them to each other, also forming the picture. I bought them for her, as improving her fine motor skills and hand-eye coordination was something that was indicated on her school report as a target.

I maked this (under orders)

Our house is full of these things now. I have had to buy repeated refills of both sets of beads. To my knowledge, she has yet to make one. She will choose a design and then (somehow) convince a nearby adult to lay it out for her while she supervises and occasionally mixes the bead colours up. Then, she will happily do the spraying down, or trail like a duckling as you iron the sodding thing. I am now an expert in making both type of designs….. 

She has only a passing association with language, but her “sad puppy” face is second to none. My husband has suggested she is placing them on every door handle she can find in an effort to prevent me from walking into them. I would take offense, except it seems to be working. 

The same thing happened last Christmas, where she managed to even rope the cleaners into making paper chain decorations with/for her. I truly believe that when it came to delegation she got someone else to write the book.

The Blue House

Since the death of my father, my fae has been searching, in vain, for a blue house. It has taken some extensive and gentle probing to ascertain the particulars of this house. It turns out this house is very big, and situated ‘over there’ (this statement is made with a vague hand gesture in a random direction). In it are her brother and sister (she’s an only child), both sets of grandparents (one grandfather is now deceased), her child minder, her friends, her unicorn, a baby shark and the entire Paw Patrol.

Safe to say, this house doesn’t exist. Or, at least, not in the form she describes. I have heard that children can have imaginary friends, but, of course, my child has to over achieve, and have a whole imaginary mansion complete with inhabitants and staff. This would not be such a problem, if she did not insist on looking for the bloody thing. She has, on more than one occasion, dragged my husband or myself off around the neighbourhood to look for this house. She has even then announced that one or other of the neighbours’ houses is her ‘blue house’. Trying to explain to people why this small creature is trying to demand entry to their abode is going to be problematic one of these days.

I believe that this has been her way of dealing with the grief of losing a relative, and is her way of processing it on top of being away from school for the six weeks of summer, and not having her friends or normal routine around. 

In an effort to nip this in the bud, we have purchased for her a blue doll’s house. Our hope is that we can populate it with effigies of all the things she believes should be there, and this will be an acceptable stand-in for the “real” blue house she keeps looking for. 

I will let you know.