Guest post from the Fae father (yes I edited it because I thought it made us sound far to depressed) Return of the Routine: A Household Held Together by Calendars, Charts, and Cuddles With the Fae’s triumphant return to school (cue Hallelujah chorus), we once again usher in that glorious illusion known as “normal routine”—whichContinue reading “Today’s state”
Category Archives: Help and guidance
Air, Spite, and Peanut Butter: My Child’s Summer Diet
As I’ve mentioned before (regularly throughout this blog), my daughter needs a routine to thrive. We are now in the doldrums of the summer holidays. We’ve done all the obvious things (beach, parks, museums—though to be honest, most of that was her grandparents while I cowered in a darkened room trying to catch up onContinue reading “Air, Spite, and Peanut Butter: My Child’s Summer Diet”
Drowning in paperwork
So, I may have mentioned that we are challenging the DLA ruling. This is not something I would recommend doing on your own: The forms are complicated and long. I am fortunate that the school which my daughter attends offers the ability to book a ‘drop in’ session with the lovely folks from citizens’ advice.Continue reading “Drowning in paperwork”
Where to get help.
This is not much a post but rather a glossary of places to go for help. After all everyone needs support sometimes. I have tried to keep them to national level but you will find that your local council will be able to help you and point you in the direction of other agencies. SupportContinue reading “Where to get help.”
Why Fight?
I have written a few posts on how to complete various forms, and why, in our humble opinion (my husband is my stalwart support in writing this blog, and my poor editor to make sure that there aren’t too many grammatical errors) it is important to chase information. This blog is why you should fightContinue reading “Why Fight?”
A guide to the EHCP
A guide to the EHCP An Educational Health Care Plan is a legal document that outlines the requirements and entitlements of your fae for the coming academic year. It was previously known as a statement. As with the statement it is reviewed each year and any changes to requirements are updated and targets reassessed. InContinue reading “A guide to the EHCP”
The blue parking badge
Blue badge what you don’t know and how to apply. The blue badge What came as a big surprise to us was that we qualified for the blue badge and disability parking in the first place. When we were told this by our social worker we did, I admit, raise an eyebrow and ask ifContinue reading “The blue parking badge”
A guide to the DLA
Guide to the DLA for under 16s The Disability Living Allowance is a benefit, provided to support people who incur extra expense due to a physical or mental disability. There a 2 forms, make sure you download and fill in the correct one for the age of the applicant. For most Fae children that willContinue reading “A guide to the DLA”
Getting help and support
Getting help and support. When our daughter was first diagnosed with autism, I was given a piece of paper with a list of barely-legible links that had been cut and pasted off the internet and were all over a line long. None of these links actually stated what they were to, and only half ofContinue reading “Getting help and support”
Glossary of terms
Autistic meltdown: when an autistic person is struggling to process too much information at one time leading to feelings of high anxiety and stress. Often linked to times where they have had to mask or been flooded with sensory input. They will lose complete control of their behaviour and it is often mistaken for aContinue reading “Glossary of terms”
Raising the Modern Fae 