Motheroffae

Direct payment part 2

So, a while ago, we got approved for 8 hours a week (school holidays only) direct payment for someone to look after our child. This means that I can get the washing and food prep for the week done without losing my mind. It also gives her a chance to interact with adults that areContinue reading “Direct payment part 2”

Why is it so hard to get help

Our fae is – undeniably – autistic. My husband and I are not diagnosed, but we’re something spicy. We thought about getting diagnosed as an act of solidarity, and were told the waiting list in our area for adults to be seen is 10 years. 10. Years. That’s insane. I was thinking about going backContinue reading “Why is it so hard to get help”

Those who should know better

There are a set of individuals I feel should really know better than to expect standard behaviours from fae children. I take that back: there are TWO professions in which I expect this, namely education, where you need to understand at least in broad strokes the needs and differences to impart information; and those inContinue reading “Those who should know better”

Managing residential

This week, my daughter went on her first “sort of” residential trip with the school. How was it “sort of” residential, I hear you ask (all 2 people who are maybe reading this outside my immediate family) Well, it goes like this. A couple of months ago a very bubbly, slightly demented child came homeContinue reading “Managing residential”

Trying new things

This coming week my daughter is trying several new things. I am aware that new experiences are essential to growth and development and no child can live in a bubble without them. That said these are milestones that I am not happy about her facing right now. Her school wants to take her on aContinue reading “Trying new things”

Ignorance is bliss

Ignorance is bliss. It’s also a good tactic when dealing with truculent, self-opinionated and tantruming children. Following on from my last post on self-awareness, our fae has upped the ante on her behaviour and has decided that she is a ‘hunter’ and that hunters ‘do what they want’ This is an interesting concept from someoneContinue reading “Ignorance is bliss”

Self-awareness

Recently, we have once again been struggling with our daughter’s behaviour. This is a perennial problem that I wish only came around once a year, but is more like once every few weeks. Just when we think we are through the latest batch of rewiring / growth spurts / illness or whatever is causing theContinue reading “Self-awareness”

Making progress

Recently, I have had occasion to sit back and marvel at how far my daughter has come in the past year or so. A year ago, if you told me that she would be regularly eating school dinners, I would have raised an eyebrow. If you told me that she would – on a semiContinue reading “Making progress”

Drowning in paperwork

So, I may have mentioned that we are challenging the DLA ruling. This is not something I would recommend doing on your own: The forms are complicated and long. I am fortunate that the school which my daughter attends offers the ability to book a ‘drop in’ session with the lovely folks from citizens’ advice.Continue reading “Drowning in paperwork”

Are we nearly there yet?

Recently, it seems, the Fae took my (reasonably) amenable child – the one that will, on occasions, do as she’s told, and that doesn’t have a complete tantrum over anything – and replaced her, once again, with a screaming whirling demon. You’d think we’d be used to it by now, but this one was turnedContinue reading “Are we nearly there yet?”